Supporting Caregivers in Clinical Research: Navigating the Pandemic

The Trifecta lived daily by Rare Disease families is now experienced by the whole world: 1) Isolation, 2) Medical Uncertainty, 3) Disruptions in Home/Work Life. Scott Schliebner of ICON & Cristol Barrett O’Loughlin of Angel Aid Cares discuss how caregivers are navigating the impact of these three forces for the whole family.