Gain a better understanding of rare disease clinical trials by listening to patient advocates and health care providers, learn how to be prepared for when the trial ends, and hear from those who chose to be advocates in this 3 part webinar series.
View the Webinar Series Below
Healthcare must reflect all of the opportunities of telehealth, but especially so for those suffering from rare diseases.
CISCRP hosted a 3-part webinar series titled “Navigating Rare Disease and Clinical Research: Every Patient Matters”. This article brief is based on the first episode, “Rare Disease Clinical Trials: Being Informed”. Moderated by Christian Rubio of Global Genes, panelists included Dr. Jahannaz Dastgir of Goreyeb Children’s Hospital of Morristown, New Jersey, Melanie Havert of Rare Patient Voice, Jenn McNary, Founder of One Rare, and Stephanie Loomer, Project Manager, CISCRP. Read the companion article.
