Pat Erickson, Parkinson’s Disease Advocate

Turning Parkinson’s into Purpose

When Pat Erickson, 57, was diagnosed with Parkinson’s disease 12 years ago, she refused to let it define her. A mother of three and PTA president at the time, she initially kept her diagnosis private. But as her symptoms became harder to hide, she embraced her husband’s advice: “If any good is going to come of this, you have to start telling people.”

Pat shared her diagnosis with a friend the night before a charity walk, and by morning, they had planned their first fundraiser—a vintage fashion show. This marked the start of Pinky’s Passion for a Parkinson’s Cure, a nonprofit that has raised $235,000 for Parkinson’s research since 2007.

Advocating Through Action

Beyond fundraising, Pat participates in clinical trials to advance Parkinson’s research. Her efforts range from blood draws and cognitive tests to more demanding studies, including one that required her to temporarily stop medication to test an experimental drug.

Pat describes the experience as “miserable,” likening her stiffness to the Tin Man from The Wizard of Oz. Despite the challenges, she stayed motivated.

“This is my way of fighting back,” she says. “I want to make a difference so someone else doesn’t have to face this disease.”

Pat advises potential trial participants with her acronym REWARD:

• Read everything to understand the study.
• Every study isn’t for everyone; wait for the right one.
• Wear comfortable clothing to stay relaxed.
• Act as your own advocate or bring someone to support you.
• Remember why you’re doing this.
• Do keep a sense of humor.

For Pat, humor is key. “If you can find something funny in a situation, it will help you get through it.”