Collection
Article
Input Needed On Using AI To Create Lay Summaries Of Trial Results
The role AI can play in creating lay summaries of clinical trial results.
Article
Kimberly Dorris, Graves’ Disease Patient Advocate
After her Graves' Disease diagnosis, Kimberly Dorris pursued patient education and advocacy full time.
Article
Noa Greenwood, Canavan Disease Clinical Trial Participant
The Greenwood family shares their experience navigating their daughter's rare disease diagnosis and the difference clinical research has made for Noa.
Article
Michael Herman, Multiple Myeloma Clinical Trial Participant & Advocate
Mike's passion for patient advocacy was sparked after receiving a shocking diagnosis of multiple myeloma.
Article
Latest CISCRP Patient Survey Reveals Diversity Gaps, Yields 5 Tips For Improvement
More effort is needed to understand the views of underserved groups, such as ethnic and racial minorities, toward clinical research
Article
Round-Up: Highlighting Recent Health Literacy Educational Materials
Round-Up: Highlighting Recent Health Literacy Educational Materials
Article
Community Trust: The Foundation for Fostering Diversity in Clinical Trials
Racial and ethnic minority populations have historically been underrepresented in clinical trials.
Article
A “Day in the Life” of a Medical Writer at CISCRP
It is Monday morning at the CISCRP office, and I open my computer a few minutes
Article
Plain Language Protocol Synopsis 101
Should Sponsors Add a Plain Language Protocol Synopsis to Future Clinical Trial Applications?
Article
CISCRP’s Finding Treatments Together Brochure for LGBTQ+ Communities
Our Approach to Codeveloping an Educational Resource for the LGBTQ+ Community
Article
Brittany Foster, Pulmonary Hypertension Patient Advocate
Britt shares her experience navigating the healthcare system and living with complex medical diagnoses.
Article
Katie Hill, Appendix Cancer Clinical Trial Participant
Katie, an appendix cancer clinical trial participant, shares her experience and advice.
Article
The Importance of Transgender and Non-Binary Inclusion in Clinical Research
At CISCRP, we value the importance of engaging and informing the groups that are underrepresented in clinical trials.
Article
Scott Germain, PTSD Patient Advocate
Scott shares his experience getting treatment for PTSD and a TBI and his passion for bringing awareness to these issues in the veteran community.
Article
Ella Balasa, Cystic Fibrosis Advocate & Patient Engagement Consultant
Ella shares her own experience living with Cystic Fibrosis, clinical research, and her journey to becoming a full-time patient advocate.
Article
Best Practices in Design for Clinical Trial Communications: The Mysterious Art of Typography
CISCRP produces a wide range of patient-friendly materials, such as informed consent forms, brochures, and trial summaries.
Article
Why Diversity in Clinical Trials Matters – May 2023 Patient Diversity Campaign
Article from our 2023 May Patient Diversity Campaign
Article
Dee Burlile, Scleroderma Clinical Trial Participant & Patient Advocate
Dee shares her experience as a scleroderma patient advocate and clinical trial participant.
Article
The Importance of Patient Engagement and its Role in Clinical Trials
The Importance of Patient Engagement and its Role in Clinical Trials
Article
Tom Smith, Rare Disease Advocate & Patient Engagement Consultant
Tom shares how his own experience living with cystic fibrosis has helped share a career focused on patient engagement and advocacy.
Article
Behind the Scenes of Health Literacy at the Movies
Learn about the infographic that contains an exercise to help readers brush up on their health literacy knowledge.
Article
How CISCRP Made Tools for Informed Decision Making
How CISCRP communicates clinical research information to the public
Article
Improving Accessibility in Clinical Trials
How to improve accessibility in clinical research
Article
Katie Doble & Her Caregivers: Facing Ocular Melanoma
Katie shares her story as an ocular melanoma survivor and the role clinical research played in her treatment.
Article
Allison Kuban, Pancreatic Cancer Clinical Trial Participant
Allison shares her experience living with pancreatic cancer and participating in clinical trial.
Article
Amy Gietzen, Scleroderma Patient Advocate
Amy shares her experience living with scleroderma and participating in clinical research.
Article
Shira Kaplan-Walker, Lupus Patient Advocate
Shira's shares her healthcare journey with lupus and the importance of advocating for yourself as a patient and others in your community.
Article
Voices from Within: Conversations on DCTs & Data Privacy
In Episode Two of Voices from Within: Humanizing Clinical Research Data, Curebase shares a comprehensive overview of how patient data is collected.
Article
Sharan Khela, Crohn’s Disease Patient Advocate
Katie shares her story as an ocular melanoma survivor and the role clinical research played in her treatment.
Article
Alicia Dellario, Ovarian Cancer Clinical Trial Participant
Alicia Dellario shares her story as an ovarian cancer survivor clinical trial participant and how clinical research saved her life.
Article
Medical Heroes Appreci-a-thon: Learn About the Importance of Clinical Research
CISCRP's annual 2023 Appreci-a-thon virtual fitness event
Article
Black Women’s Expo Provides Transformational Experience
CISCRP at the 2022 Black Women's Expo in Atlanta
Article
Improving LGBTQ+ Inclusivity in Ovarian Cancer Care
From an ovarian cancer awareness perspective, there are specific messages for the LGBTQ+ community that need to be communicated.
Article
Kim Zukerberg, Ovarian Cancer Clinical Trial Participant
Kim shares her experience battling ovarian cancer and the impact of clinical trial participation on her health.
Article
Why Participation in Clinical Trials Is a Must for Hispanics
Clinical trials need ethnically diverse participants so scientists can develop a greater understanding of how diseases impact different people.
Article
Fred Neubauer, Cholangiocarcinoma Patient Advocate
Fred shares his battle with Cholangiocarcinoma, a rare form of cancer, and his hope to participate in clinical research.
Article
Nia Grant, Type 1 Diabetes Clinical Trial Participant
Nia shares her experience as a passionate advocate and clinical trial participant for Type 1 Diabetes.
Article
DEI Series — Educating Clinical Research Practitioners Through Video
CISCRP partnered with WCG to create a video for researchers and study staff that emphasizes the importance of diversity in clinical trials.
Article
Marc Yale, Mucous Membrane Pemphigoid Advocate
Marc shares his experience living with Pemphigoid and his passion for patient advocacy.
Article
Donald MacIntosh, Alzheimer’s Advocate
After a 25-year career as a lawyer, Donald was shocked when he was diagnosed with Alzheimer's disease.
Article
Madhura Balasubramaniam, Crohn’s Disease Advocate
Madhura shares her unique perspective as an Indian woman living with IBD- a condition that faces stigma in the South Asian community.
Article
No “Kidding”: Using Health Literacy to Communicate Clearly About Pediatric Trials
Using Health Literacy to Communicate Clearly About Pediatric Trials
Article
The Couple That’s Empowering Communities of Color to Participate in Parkinson’s Disease Clinical Trials
Discover the Parkinson’s disease diagnosis that spurred an empowering journey Denise is still on today.
Article
Jenn McNary, Three Sons & Three Rare Diseases
Jenn shares her experience as a mother to three children who have rare diseases with serious physical impacts.
Article
Videos in Health Literacy
Addressing the effectiveness of videos in clinical research education
Article
Dr. Tracy Dixon-Salazar, Lennox Gastaut Syndrome Advocate & Caregiver
Tracy shares her experience as a caregiver for her daughter Savannah who lives with LGS, a developmental brain disorder.
Article
Health Literacy: Making Content Clear, Engaging, and Appropriate for Patients and the Public
What is healthy literacy and what is CISCRP's Health Literacy team doing?
Article
Angie Volk, MS Advocate
Angie shares her experience living with Multiple Sclerosis and her passion for patient advocacy.
Video
Improving Access to & Experiences of Transgender & Non-Binary Patients in Clinical Research
Improving Access to & Experiences of Transgender & Non-Binary Patients in Clinical Research
Video
Working Towards a More Inclusive Environment: Transgender & Non-Binary Participants in Clinical Research
Learn insights on significant barriers that trans and non-binary participants face and how to create more diverse and inclusive clinical trials.
Article
Melanie and Aaron Havert, Hemophilia Patient Advocate & Caregiver
Melanie and Aaron share their journey navigating Hemophilia A for Aaron and their daughter, Eleanii.
Article
Richie Khan, Wolfram-Like Syndrome Patient Advocate
Richie hopes to bring awareness and education about his rare diagnosis to the research community.
Article
Reverend Donna Matlach, Eosinphilic Asthma Clinical Trial Participant
Donna's journey with severe eosinophilic asthma led her to life-saving treatments and clinical trial advocacy.
Article
Phyllis Kaplan, Type 1 Diabetes Clinical Trial Participant
Phyllis shares her story as a long-term advocate and and Type 1 Diabetes patient.
Article
Desiree DeLuca-Johnson, Breast Cancer Clinical Trial Participant
Desiree shares her experience finding a clinical trial after her breast cancer diagnosis.
Article
Melvin Mann, Chronic Myelogenous Leukemia (CML) Patient Advocate
Medical Hero Story: Melvin Mann & Chronic Myelogenous Leukemia (CML)
Article
Tina Aswani Omprakash, Crohn’s Disease Clinical Trial Participant
Tina’s path to becoming a health and disability advocate began with her own battle against Crohn’s disease.
Article
TJ Sharpe, Melanoma Patient Advocate
When melanoma unexpectedly returned after a successful surgery twelve years prior, T.J. Sharpe was both a husband and a father.
Article
Jackie Zimmerman, MS Patient Advocate
Diagnosed with relapsing-remitting MS at just 21, Jackie turned her personal journey into a mission to support others.
Article
Jillian McNulty, Cystic Fibrosis Advocate
Medical Hero Story: Jillian McNulty, Cystic Fibrosis Advocate
Article
Shauna Whisenton, Sickle Cell Disease Advocate
Shauna shares her experience battling SCD and how advocacy has become a part of her everyday life.
Article
Rachel Petties, Congenital Generalized Lipodystrophy Caregiver & Advocate
Rachel Petties, a mother of five, refuses to let her daughter’s rare genetic disorder define the lives of their family.
Article
Remembering Rachel Minnick, Clinical Trial Advocate
Rachel's family and colleagues share the lasting impact she left as a mother, clinical trial participant, and patient advocate.
Article
Shanelle Gabriel, Lupus Clinical Trial Participant & Advocate
Shanelle shares her experience living with lupus and promoting awareness and education in her community.
Article
Juana Espino, Motherhood & Cervical Cancer
As a new mother, Juana was diagnosed with cervical cancer and made the decision to join a clinical trial for treatment.
Article
Leah Crocker, Lupus Patient Advocate
Leah shares her medical journey to being diagnosed with lupus and how clinical research has played a positive role in her treatment.
Article
Sandy Morris, ALS Advocate
Medical Hero Story: Sandy Morris, ALS Advocate
Article
Katie Klatt, Battling COVID-19
After working on the front lines during the pandemic, Katie shares her experience as a both a nurse and patient herself.
Article
Gail Graham, HIV Patient Advocate
Gail shares her experience with HIV and how clinical research, patient advocacy, and the support of her community made an impact.
Article
Melinda Bachini, Cholangiocarcinoma Clinical Trial Participant
After being diagnosed with Cholangiocarcinoma, Melinda shares how clinical trials gave her hope.
Article
Lee Giller, Breast Cancer Clinical Trial Participant
Medical Hero Story: Lee Giller & BRCA1
Article
Kaamilah Gilyard, Lupus Advocate & Clinical Trial Participant
A long-time lupus patient and advocate, Kaamilah is passionate about advocacy and spreading awareness in her community.
Article
Kyle Bryant, Friedreich’s Ataxia Clinical Trial Participant
Kyle shares his experience of being diagnosed with Friedreich's Ataxia at age 17 and how cycling has played a part in his treatment and advocacy work.
Article
Jonathan Sari, MS Clinical Trial Participant
Jonathan participates in clinical trials for his progressive MS, with the hope that a new treatment will save his life.
Article
Luanne Bonanno, Diabetes Clinical Trial Participant
When LuAnne’s oldest daughter was diagnosed with gestational diabetes, LuAnne decided it was time to take action by participating in a trial.
Article
Jameisha Brown, Burkitt’s Lymphoma Clinical Trial Participant
Jameisha shares her story battling cancer as child and how clinical research participation changed her life.
Article
Pat Erickson, Parkinson’s Disease Advocate
When Pat Erickson, 57, was diagnosed with Parkinson’s disease 12 years ago, she refused to let it define her.
