Who We Are

Founded in 2003, The Center for Information and Study on Clinical Research Participation (CISCRP) is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research participation and the role that each party plays as a participant in the process. CISCRP’s staff and board of advisors have highly diverse backgrounds - from the clinical research, healthcare and advocacy communities. CISCRP’s funding comes from a wide variety of sources including individual donors, government and research institutions, foundations and corporations.

CISCRP Board of Directors

	Ken Getz, Founder and Board Chair Ken Getz is the founder and former CEO of CenterWatch and a senior fellow at the Tufts Medical School. He is a well-known observer of the clinical research enterprise, a speaker at conferences and meetings, an active member of various boards and committees, and has published over 150 articles and chapters in peer-review journals and books. He is also the author of two nationally recognized books for patients and their advocates.
	Sharon Terry, Board of Director, CISCRP President & CEO, Genetic Alliance
	Diane Simmons, President and CEO Diane Simmons, CISCRP’s President and CEO, has extensive experience in managing a nonprofit. For over ten years, she ran a $5 million United Way agency where she was responsible for the development and implementation of the agency’s strategic plan and she managed the functions of membership, marketing, programming, and finance. Prior to her involvement in running a nonprofit, she rose through the ranks of Citibank/Citigroup to Vice President of Management Development and Training, then Chief of Staff to the head of Citibank Visa/MasterCard, and then to Vice President of Citigroup Insurance Marketing generating $80 million business income annually.
Leadership Team
	Jill McNair, National Director, AWARE for All Jill McNair is the National Director, AWARE for All Clinical Research Education Days at CISCRP. Before joining the CISCRP team Jill spent 10 years at the Drug Information Association where she managed a team dedicated to the development of the educational meetings and webinars. She resides in Pennsylvania with her husband and two children.
	Emily Ouellette, Senior Project Manager Emily Ouellette is CISCRP’s Senior Project Manager. She is a graduate of Colby College and the University of Pittsburgh School of Law where she was a member of the Journal of Environmental and Public Health Law. Prior to law school she served several years as a paralegal in Washington, D.C. and was an instructor with World Teach in Ecuador. She is responsible for project management and oversight of regulatory matters affecting clinical trials.
	Niki Eastley, Webmaster and Project Manager Niki Eastley is CISCRP's Webmaster and Project Manager for the Search Clinical Trials Search Engine. Prior to joining CISCRP in 2006, Niki spent 5 years at CenterWatch where she managed the Clinical Trial Listing Service and the CenterWatch.com website. Niki graduated from Boston College, receiving a BA in Communications.

CISCRP Board of Advisors

Diana L. Anderson, Ph.D.
President & CEO, D. Anderson & Company

Mr. Evan Brett
Vice President, Clinical Trials Media

Dr. Marylou Buyse
Chief Medical Director, SWHP, Scott & White Healthcare

Dr. Robert Califf
Vice Chancellor for Clinical Research, Duke University
Director, Duke Translational Medicine Institute

Joan A. Chambers
Chief Operating Officer, CenterWatch

Dorothy Cirelli
Former Chief, NIH Patient Recruitment and Public Liaison Office

Scott H. Connor
Vice President, Marketing, Acurian, Inc

Dr. William Crowley
Professor of Medicine & Director of Clinical Research, Massachusetts General Hospital

Peter A. DiBiaso
Clinical Development Operations, Vertex Pharmaceuticals

Sarah Ebner, MBA, MPH
President, Investigator Support Services, Inc., and Director of Sales, Phone Screen

Yolanda Fleming
Project IMPACT, National Medical Association

Dr. Jorge Guerra
Sr VP, Global Clinical Operations, Biogen Idec

Lani Hashimoto
Executive Director, Specialized Site Services, i3 Research

Courtney Gray Haupt
Vice President, Public Affairs and Health Policy, Spectrum

Barbara Kephart
Manager, Patient and Investigator Recruitment and Retention, Roche, Pharma Development – US

Felix A. Khin-Maung-Gyi, Pharm. D.
CEO, Founder, Chesapeake Research Review, Inc.

David Knepper
Executive Director Clinical Research, PharmaNet, Inc.

Dr. Greg Koski
Associate Professor of Anaesthesia, Harvard Medical School & VP, Ethics & Professional Conduct, MGH

James Kremidas
Head of Patient Outreach, Quintiles

Timothy S. LaCroix, MBA
Engagement Partner, Business Development, Premier Research

Mark Lacy
President & CEO, Benchmark Research

Christine Pierre, RN
President & CEO, Rx Trials, Inc.

Kay Ryan
Director of Clinical Research Operations, MGH Clinical Research Program

Bernard Schwetz DVM
Former Director, United States Office of Human Research Protection

Linda Strause Ph.D.
Executive Director, Oncology Clinical Operations, Vical Incorporated

Katherine Waite
President, The Portico Group

Laura Watkins, Ph.D.
Principal, Dovetail Associates

Ms. Myrl Weinberg
President, National Health Council

Nancy Zeleniak
Global Head, Venture Relations
PPD, Inc.

CISCRP 2009-2010 Annual Report